A hospitalized girl recounts chaotic experiences with fellow patients amidst ongoing struggles with her cerebrospinal fluid leak diagnosis.
I’m a real tough kid, I can handle it: Myelogram aftermath
The author updates friends about their ongoing hospitalisation, expressing frustration over worsening headaches and limited medical progress.
You wouldn’t last an hour in the asylum: CT Myelogram #2
The author shares their challenging medical experience involving a CT myelogram, severe headaches, and the support of healthcare staff.
The hospital was a drag: Long term admissions …
The author reflects on their hospital stay, grappling with pain, loneliness, and the significant uplift from a friend’s visit amidst challenging circumstances.
You opened my eyes and you made me believe …
Lucy shares emotional support received from nurses during hospital stays, highlighting their compassion and understanding amid struggles with chronic pain.
All’s well that ends well, but I’m in a new hell every time …
The CT myelogram results were normal, leading to a repeat blind epidural blood patch, yielding a partial success in headache relief.
All I did was bleed: Navigating CT Myelogram #1
The author shares a personal account of undergoing a CT myelogram, describing the experience with humor despite intense anxiety and a severe headache.
Still a believer, but I don’t know why: Post procedure
After initially feeling headache-free post-blood patch, the headache returned, leading to disappointment and contemplation of repeat procedures.
Blood Patch: I swear I don’t love the drama, it loves me …
Lucy retells her blood patch procedure including difficulties faced during arterial line attempts and the eventual success of the procedure.
Not just a headache: I should have known
After a painful hospital experience, the author discovers they may have a CSF leak, linked to their hypermobility condition.
The challenges of headaches: A lot of regrets about that …
Lucy experiences a severe headache and navigates a frustrating medical journey, ultimately diagnosed with a migraine after lengthy evaluations.
Once upon a time, a few mistakes ago …
In January 2024, a teacher experiences worsening headaches, ultimately leading to research about possible causes, delaying professional help.
