The author shares a humorous and candid life update about living with a leaky spine, revealing insights from a recent article linking mast cells to cerebrospinal fluid dynamics. They detail how these cells can mimic CSF leak symptoms and potentially contribute to chronic issues, emphasizing the challenging journey through diagnosis and treatment in healthcare.
The Headache Chronicles
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But when I count the scars there’s a moment of truth: The reality of “working” …
The author shares struggles with chronic pain while returning to work, emphasizing the importance of understanding and self-acceptance.
The Headache Chronicles
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Believe me, I could do it: Back in the classroom (sort of) …
Lucy reflects on her challenging health journey over 21 months, reclaiming her identity and work despite chronic illness.
The Headache Chronicles
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Ask me what I learned: The moment of medication truth
Lucy shares her ongoing struggles with chronic health issues, highlighting medication experiences, costs, and challenging side effects.
The Headache Chronicles
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I enjoy walking Camden Market in the afternoon: A return visit to London
Hey! Hey! This week’s entry is brought to you curtesy of some overpriced and under scanned train tickets! Yep, that’s right, I am more than mildly irritated by the fact I am an honest citizen who (stupidly) activated her train tickets only to not have them scanned on the train […]
Side Quest Specialties
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You say, I don’t understand, and I say, I know you don’t: My headache vs gastro (sort of) …
The author recounts a frustrating visit to New Cross A&E after advice from their dietician, emphasizing inadequate care and lack of understanding regarding their complex health issues. Despite presenting detailed medical notes, the healthcare staff displayed disbelief and negligence, leading to feelings of helplessness and a decision to file a complaint about the inaccuracies in their discharge summary.
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I’ve never heard silence quite this loud: One final neuro appointment in Stoke
Hey! Hey! It’s a pleasure to welcome you back to my borderline unbelievable CSF leak journey. I invite you to relive my latest, and last, neurology outpatient appointment at Stoke. Yep, that’s correct, I am now officially London’s problem (lucky them!), but more on that little gem later! For now, […]
Side Quest Specialties
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Stupid girl: Gastro side quest …
Lucy shares her struggles with severe nausea and weight loss, experiencing frustration with medical professionals’ dismissive attitudes.
The Headache Chronicles
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I’d go back to December, turn around and change my own mind …
Hey! Hey! Welcome back, loyal readers, to the latest installment of Not just a headache, honey. You’re joining me just one calendar month away from today. The 16th June 2025, to be exact, but before we dive into that thrilling climax, let me rewind the tape for you … Flashback […]
The Headache Chronicles
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Another CSF Specialist: How is it in London?
The author details their experience attending a medical appointment for a spinal fluid leak in London, highlighting issues like miscommunication during travel, escalating pain from the condition, and the consultant’s optimistic yet uncertain guidance. Despite concerns about their case being handled effectively, they await further assessments, reflecting their skepticism about promised outcomes.
The Headache Chronicles
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CSF Leak vs the NHS: Long story short, it was a bad time …
The author recounts a challenging neurology follow-up appointment just eight days after their mother’s passing. Despite receiving subpar second opinions on their cerebrospinal fluid leak, they resolve to seek further treatment. This involves extensive research to find specialists capable of better diagnosing and addressing their condition. Resilience is key amid their struggle.
The Headache Chronicles
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What am I supposed to do if there’s no you?: Navigating Grief and Health Challenges
The post recounts the emotional turmoil following the author’s mother’s diagnosis of terminal pancreatic cancer. It details hospital visits, the author’s struggle with her own health issues, and the profound stress of witnessing her mother’s decline. Ultimately, despite attempts to support her mother, the author is left heartbroken after her passing.