Lucy reflects on her challenging health journey over 21 months, reclaiming her identity and work despite chronic illness.
The Headache Chronicles
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CSF Leak vs the NHS: Long story short, it was a bad time …
The author recounts a challenging neurology follow-up appointment just eight days after their mother’s passing. Despite receiving subpar second opinions on their cerebrospinal fluid leak, they resolve to seek further treatment. This involves extensive research to find specialists capable of better diagnosing and addressing their condition. Resilience is key amid their struggle.
The Headache Chronicles
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What am I supposed to do if there’s no you?: Navigating Grief and Health Challenges
The post recounts the emotional turmoil following the author’s mother’s diagnosis of terminal pancreatic cancer. It details hospital visits, the author’s struggle with her own health issues, and the profound stress of witnessing her mother’s decline. Ultimately, despite attempts to support her mother, the author is left heartbroken after her passing.
The Headache Chronicles
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I was gentle till the circus life made me mean …
A hospitalized girl recounts chaotic experiences with fellow patients amidst ongoing struggles with her cerebrospinal fluid leak diagnosis.
The Headache Chronicles
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I’m a real tough kid, I can handle it: Myelogram aftermath
The author updates friends about their ongoing hospitalisation, expressing frustration over worsening headaches and limited medical progress.
The Headache Chronicles
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You wouldn’t last an hour in the asylum: CT Myelogram #2
The author shares their challenging medical experience involving a CT myelogram, severe headaches, and the support of healthcare staff.
The Headache Chronicles
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The hospital was a drag: Long term admissions …
The author reflects on their hospital stay, grappling with pain, loneliness, and the significant uplift from a friend’s visit amidst challenging circumstances.
The Headache Chronicles
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Still a believer, but I don’t know why: Post procedure
After initially feeling headache-free post-blood patch, the headache returned, leading to disappointment and contemplation of repeat procedures.
The Headache Chronicles
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We learn to live with the pain: The beginning of the unknown …
Lucy shares her chaotic journey after being diagnosed with a spinal CSF leak in January 2024, transitioning from an active primary school teacher and marathon runner to someone struggling with persistent headaches. While seeking treatment and understanding, she aims to raise awareness about her condition through her honest blog.