The author recounts a challenging neurology follow-up appointment just eight days after their mother’s passing. Despite receiving subpar second opinions on their cerebrospinal fluid leak, they resolve to seek further treatment. This involves extensive research to find specialists capable of better diagnosing and addressing their condition. Resilience is key amid their struggle.
The Headache Chronicles
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What am I supposed to do if there’s no you?: Navigating Grief and Health Challenges
The post recounts the emotional turmoil following the author’s mother’s diagnosis of terminal pancreatic cancer. It details hospital visits, the author’s struggle with her own health issues, and the profound stress of witnessing her mother’s decline. Ultimately, despite attempts to support her mother, the author is left heartbroken after her passing.
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I was gentle till the circus life made me mean …
A hospitalized girl recounts chaotic experiences with fellow patients amidst ongoing struggles with her cerebrospinal fluid leak diagnosis.
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I’m a real tough kid, I can handle it: Myelogram aftermath
The author updates friends about their ongoing hospitalisation, expressing frustration over worsening headaches and limited medical progress.
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You wouldn’t last an hour in the asylum: CT Myelogram #2
The author shares their challenging medical experience involving a CT myelogram, severe headaches, and the support of healthcare staff.
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The hospital was a drag: Long term admissions …
The author reflects on their hospital stay, grappling with pain, loneliness, and the significant uplift from a friend’s visit amidst challenging circumstances.
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All I did was bleed: Navigating CT Myelogram #1
The author shares a personal account of undergoing a CT myelogram, describing the experience with humor despite intense anxiety and a severe headache.
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Still a believer, but I don’t know why: Post procedure
After initially feeling headache-free post-blood patch, the headache returned, leading to disappointment and contemplation of repeat procedures.
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Blood Patch: I swear I don’t love the drama, it loves me …
Lucy retells her blood patch procedure including difficulties faced during arterial line attempts and the eventual success of the procedure.
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Not just a headache: I should have known
After a painful hospital experience, the author discovers they may have a CSF leak, linked to their hypermobility condition.
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The challenges of headaches: A lot of regrets about that …
Lucy experiences a severe headache and navigates a frustrating medical journey, ultimately diagnosed with a migraine after lengthy evaluations.
The Headache Chronicles
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Once upon a time, a few mistakes ago …
In January 2024, a teacher experiences worsening headaches, ultimately leading to research about possible causes, delaying professional help.