Not just a headache, honey https://validator.w3.org/feed/docs/rss2.html Dear my own body … Blog What am I supposed to do if there’s no you?: Navigating Grief and Health Challenges Ask me what I learned: The moment of medication truth Believe me, I could do it: Back in the classroom (sort of) … But when I count the scars there’s a moment of truth: The reality of “working” … The Anatomy of an Undiagnosed Girl … You wouldn’t last an hour in the asylum: CT Myelogram #2 All I did was bleed: Navigating CT Myelogram #1 I Believe You: A Reckoning with Medical Gaslighting And if your letters ever said goodbye: The power and price of speaking up This life will beat you up, up, up, up: Battling everyone’s opinions … Gonna go down in flames: An evening with the neurologist Hello New Year, Hello Same Symptoms … Connecting the clues: Plot line for Greys Anatomy S23 Arms outstretched, back from the dead: Something normal It’s hard to dance with a devil on your back: Leaking in more ways than one Repetitive disbelief: This wasn’t just one appointment … Stop talking dirty to me: Speaking up in your time Make your own sunshine: Taking matters into my own hands Stupid girl, I should have known, I should have known: Gastro side quest You say, I don’t understand, and I say, I know you don’t: My headache vs gastro (sort of) … I enjoy walking Camden Market in the afternoon: A return visit to London I’ve never heard silence quite this loud: One final neuro appointment in Stoke Writing myself back in: What the notes missed out … Where symptoms end and assumptions begin: the label And you might think I’m bulletproof, but I’m not … Hospital survival kit 101: Everything they forget to mention … I miss the old days, you didn’t have to change … She takes on the pain and bears it on her own: Unexpected, side quests (A day in the life) … I’d go back to December, turn around and change my own mind … Inside the CSF Leak chaos: I was tame, I was gentle till the circus life made me mean … Inside the hospital: ‘Cause I’m a real tough kid, I can handle it … It’s me! Hi! I’m the patient! It’s me! Symptoms and their realities: I know my pain is such an imposition CSF Leaks 101: Symptoms, causes and treatments … The reality of hospital life: The hospital was a drag, worst sleep that I ever had … You called me up again just to break me like a promise … Young and in hospital: I just want to feel okay again Navigating headache hell: Oh, it’s so sad to think about the good times … Dear “it could be worse” … Dear pain scale that doesn’t work for me … Dear “but you don’t look sick …” You opened my eyes and you made me believe … All’s well that ends well, but I’m in a new hell every time … Headaches and hospitals: You knocked me off my feet again … Another CSF Specialist: How is it in London? Life before leaking: I close my eyes and the flashback starts CSF Leak vs the NHS: Long story short, it was a bad time … Navigating the CSF Leak waiting game: All of this silence and patience, pining and desperately waiting …